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Castleman Disease Collaborative Network
CDK55: Publishing CDCN wikipedia page
The [https://www.cdcn.org/ Castleman Disease Collaborative Network (CDCN)] is the largest organization focused on [[Castleman's disease|Castleman disease]]. It is a global collaborative network involved in research, awareness, and patient support. It was founded in 2012 and has used a collaborative network approach to advance several research studies on Castleman disease.
== History ==
The Castleman Disease Collaborative Network was founded in 2012 by Dr. Frits van Rhee and Dr. David Fajgenbaum after Dr. Fajgenbaum was diagnosed with idiopathic multicentric Castleman disease as a medical student in 2010.<ref></ref> Soon after it's creation, the CDCN merged with CARE, the Castleman's Awareness and Research Effort.<ref name=":0">Liquid error: wrong number of arguments (1 for 2)</ref>
Dr. Fajgenbaum has served as the executive director of the CDCN since it's founding.
== Collaborative Network Approach ==
The CDCN developed a collaborative network approach to advance research on Castleman disease.<ref name=":0" /> This model consists of:
# Creating a global network of expert researchers and clinicians
# Leveraging the community to generate and prioritize research projects
# Combining available resources to conduct collaborative research
== Activities ==
The CDCN is a global collaborative network focused on Castleman disease. It is involved in research, awareness, and patient support.<ref>Liquid error: wrong number of arguments (1 for 2) AAAS|access-date=2018-07-20|language=en}}</ref>
=== Research ===
The CDCN provides grant funding to support research on the etiology, pathogenesis, diagnosis, and management of Castleman disease. The CDCN is involved in longitudinal research initiatives designed to facilitate multiple projects.<ref name=":0" />
==== ACCELERATE Natural History Study ====
The ACCELERATE ('''A'''ccelerating '''C'''astlmean '''C'''are with an '''E'''lectronic '''L'''ongitudinal registry, '''E'''-'''R'''epository, '''A'''nd '''T'''reatment '''E'''ffectiveness research) natural history study is a collaborative project between the CDCN, [[Janssen Pharmaceutica|Janssen Pharmaceuticals]], and the [[University of Pennsylvania]]. It is a database of clinical information drawn from patients diagnosed with Castleman disease and includes symptoms, laboratory tests, imaging, pathology, and treatment approaches. The ACCELERATE study was designed to document the natural history of Castleman disease, range of clinical features associated with the disease, and response to treatment. Patients can enroll themselves in the ACCELERATE study [[Castleman Disease Collaborative Network#External links|online]].<ref></ref>
==== Castlebank ====
The Castlebank is a collaboration between the CDCN and the University of Pennsylvania to house a centralized [[Biobank]] of tissue samples donated by patients with Castleman disease and collected from researcher around the world.<ref name=":0" /> The Castlebank is used to support collaborative research projects requiring tissue samples.
=== Awareness ===
==== Castleman Warriors ====
The Castleman Warriors are a group of patients and loved ones who work to raise awareness, raise funds, and support patients with Castleman disease.
==== World Castleman Disease Day ====
World Castleman Disease Day was established in 2018 and takes place every year on July 23rd.
==== Patient Summit ====
Every year, the CDCN hosts a patient summit in Philadelphia for patients diagnosed with Castleman disease and their loved ones. The summit includes educational activities, updates on research, and social activities.
== References ==
<!--- See https://ift.tt/19lM2in on how to create references using <ref></ref> tags, these references will then appear here automatically -->
== External links ==
* https://www.cdcn.org/
* [https://ift.tt/2OIIxum ACCELERATE Natural History Study]
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[[Category:Articles created via the Article Wizard]]
== History ==
The Castleman Disease Collaborative Network was founded in 2012 by Dr. Frits van Rhee and Dr. David Fajgenbaum after Dr. Fajgenbaum was diagnosed with idiopathic multicentric Castleman disease as a medical student in 2010.<ref></ref> Soon after it's creation, the CDCN merged with CARE, the Castleman's Awareness and Research Effort.<ref name=":0">Liquid error: wrong number of arguments (1 for 2)</ref>
Dr. Fajgenbaum has served as the executive director of the CDCN since it's founding.
== Collaborative Network Approach ==
The CDCN developed a collaborative network approach to advance research on Castleman disease.<ref name=":0" /> This model consists of:
# Creating a global network of expert researchers and clinicians
# Leveraging the community to generate and prioritize research projects
# Combining available resources to conduct collaborative research
== Activities ==
The CDCN is a global collaborative network focused on Castleman disease. It is involved in research, awareness, and patient support.<ref>Liquid error: wrong number of arguments (1 for 2) AAAS|access-date=2018-07-20|language=en}}</ref>
=== Research ===
The CDCN provides grant funding to support research on the etiology, pathogenesis, diagnosis, and management of Castleman disease. The CDCN is involved in longitudinal research initiatives designed to facilitate multiple projects.<ref name=":0" />
==== ACCELERATE Natural History Study ====
The ACCELERATE ('''A'''ccelerating '''C'''astlmean '''C'''are with an '''E'''lectronic '''L'''ongitudinal registry, '''E'''-'''R'''epository, '''A'''nd '''T'''reatment '''E'''ffectiveness research) natural history study is a collaborative project between the CDCN, [[Janssen Pharmaceutica|Janssen Pharmaceuticals]], and the [[University of Pennsylvania]]. It is a database of clinical information drawn from patients diagnosed with Castleman disease and includes symptoms, laboratory tests, imaging, pathology, and treatment approaches. The ACCELERATE study was designed to document the natural history of Castleman disease, range of clinical features associated with the disease, and response to treatment. Patients can enroll themselves in the ACCELERATE study [[Castleman Disease Collaborative Network#External links|online]].<ref></ref>
==== Castlebank ====
The Castlebank is a collaboration between the CDCN and the University of Pennsylvania to house a centralized [[Biobank]] of tissue samples donated by patients with Castleman disease and collected from researcher around the world.<ref name=":0" /> The Castlebank is used to support collaborative research projects requiring tissue samples.
=== Awareness ===
==== Castleman Warriors ====
The Castleman Warriors are a group of patients and loved ones who work to raise awareness, raise funds, and support patients with Castleman disease.
==== World Castleman Disease Day ====
World Castleman Disease Day was established in 2018 and takes place every year on July 23rd.
==== Patient Summit ====
Every year, the CDCN hosts a patient summit in Philadelphia for patients diagnosed with Castleman disease and their loved ones. The summit includes educational activities, updates on research, and social activities.
== References ==
<!--- See https://ift.tt/19lM2in on how to create references using <ref></ref> tags, these references will then appear here automatically -->
== External links ==
* https://www.cdcn.org/
* [https://ift.tt/2OIIxum ACCELERATE Natural History Study]
<!--- Categories --->
[[Category:Articles created via the Article Wizard]]
August 04, 2018 at 01:49AM
